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Old 06-20-2009, 12:41 AM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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I don't have any help for you, but wanted to express my sympathy for what YOU are going through! I think it's much harder watching a loved one go through something than it is to endure it yourself (once you get adjusted to the idea that you have a disease anyway). And being so far away and trying to help must be sheer torture for you. You are a WONDERFUL daughter and I'm sure with your support even at a long distance, your parents with handle this much better than if they didn't have you!

Thank you, on their behalf, for being so caring and resourceful for them. They are very lucky to have you. There is a website you can use to locate doctors of different specialties if these other suggestions don't pan out for you. It's Vitals.com and you can search by specialty, location and even check out the ratings for their hospital affiliation and schooling. It's free. Another thing I did was a Google search for Neurologist + Denver, CO for myself and that's how I found the neuro I'm seeing now. The websites generally list their areas of interest or sub-specialty, so you want to look for a MG specialist if you can find one, or at least neuromuscular. They all seem to have some area they concentrate on, so what out for things like neuro-vascular (they deal with migraines and aneurysms) or head trauma specialties, etc. They probably will be familiar with MG but not really staying up with the latest.

Best of luck to you. Send your Mom, and Dad, my best wishes for her finding a good doc and getting wonderful treatment!
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Becky
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