Thread: 12th case of PML from Tysabri posted today
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Old 06-20-2009, 02:59 PM
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I agree with Komokazi.

The EU and ROW are much more aggressive. I also believe that they have prescribed Tysabri when the people who want it have no other choices, having tried all other options. There are reports out now that Tysabri will no longer be an option after mitoxantrone according to Tysabri website in Germany.

I also do not like being BIIB's mushroom. I want the information that allows me to make an informed decision. They ain't giving it to me. They are making me search everywhere under the sun for information besides where we SHOULD be getting it from.

I never forget that those of us who are actually ON Tysabri need to be vigilant for ANY adverse events, no matter how small. Changes in thinking, affect, speech, eyesight, etc. are all things we need to watch for.

Correction! The information did not come from Tysabri website. It was from http://chefarztfrau.de/?page_id=418#comment-34516 and was from one of the neuros who answer questions on that board in answer to a question from a patient, dated 16 June 2009
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Last edited by Riverwild; 06-20-2009 at 03:39 PM. Reason: see above
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