View Single Post
Old 06-20-2009, 03:12 PM
DiMarie's Avatar
DiMarie DiMarie is offline
Magnate
 
Join Date: Aug 2006
Posts: 2,871
15 yr Member
DiMarie DiMarie is offline
Magnate
DiMarie's Avatar
 
Join Date: Aug 2006
Posts: 2,871
15 yr Member
Default

Pam about Jackies needs, I can only share some of the things we had with my nephew and all our kids.

The early morning, routines are activity related. The rest of the day is a pace. When dinner hour comes, kids have some of the most stimulating events of the day at the peeking of burn out physically and mentally.

THe parents come home from work, busy activity making dinner plans and eating. TV on, lots of phone ringing. Everything just screams stimuli's.

IF they are coming at supper time, then they can see and verbalize the support service. For my sister she was able to have her care switched to evening and the funds were there to hire an aide. THe aid was with my nephew for years and part of the family.

Lots of suggestions were made to tone down events. THe ringer turned off the house phone, the other son had friends over out side or gone by 5.
There was a tape of calming music played, small water fountain about $10 for it.

I was not part of the pow wow after the observartion but I know lots of positive things for my nephew happened.
The key was identifying the family needs and not the 8 - 4 program hours.

Hope the phone calls help. If not contact his PCP and see what other programs are out there for a bettter fit.
Especially summer hours..
Hope you can calm down,
di
__________________

.
Pocono area, PA

.

.

.
DiMarie is offline  
"Thanks for this!" says:
bizi (06-20-2009)