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Old 06-20-2009, 05:54 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Achievable goals are what we need

Maybe a video would be a good second project. It will pose more problems - i.e. not every one has a camera, more difficult distribution, etc. The compilation of our past conversations would be simple. Right now, I think we need something doable.

Your first paragraph would be great in the chapter on the relationship with our doctors, BTW

Quote:
Originally Posted by Ibken View Post
IMHO - until we wrest pd from the neuro bread and butter role it plays, there will be no help for us. Remember, they were educated by the drug companies.

I'm not into throwing blood bags but think it will take something dramatic to get attention - we don't have to shoot a neuro but SOMETHING BOLD is required. I'm thinking - WAY OUTSIDE THE BOX!

A book is fine but a movie would be better! THEN the book would be read.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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DejaVu (06-22-2009)