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Old 06-20-2009, 06:19 PM
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Raglet Raglet is offline
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Join Date: Jul 2008
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15 yr Member
Raglet Raglet is offline
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Join Date: Jul 2008
Posts: 229
15 yr Member
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Actually I am here for the opposite reason - I definitely have lupus (high level of multiple antibodies) but my disease resembles MS so I am interested in reading about MS (it that makes any sense at all).

Definitely go have a look at the lupus foundation of America Website - there is a lot of up to date information on there.
http://www.lupus.org/newsite/index.html

There is also a message board you can post questions on.

The prognosis of lupus is no worse than MS - it depends on the severity of the disease (there is a range, some get it worse than others). But, overall it is a chronic disease that needs managing rather than a fatal one, if that is what is worrying you.

Some have it very mildly indeed, and it hardly impacts on their lives, others have it very severely with severe impact on their live. The new name for cns lupus is NPSLE.

Having an ANA that is only a bit high is not diagnostic of lupus. The ANA is a screening test that means that further testing should be done. Anti-ds-dna's when present are diagnostic of lupus.

Many people who don't have anything wrong with them at all can have a low positive ANA but, seeing you obviously have neurological stuff going on it would be sensible to have further testing to rule in or out NPSLE.

The other disease that is related to lupus and often confused with MS is Antiphospholipid Syndrome. The treatment for that is very different than for either MS or lupus, so it can be important to distinguish between MS and APS. I have APS as well as lupus, and am on coumadin for it (anticoagulation therapy).

hth
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