View Single Post
Old 06-20-2009, 07:24 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Welcome to the world of neuro stuff!

It does sound as if you have the right docs working for you tho, and I DO mean working for you. That can make all the difference in the long term.

Here is a web site often referred to in the peripheral neuropathy forum:
http://neuromuscular.wustl.edu/
This is the index page and I would encourage you to take a first look at the 'Neuromuscular Evaluation' portion of the site as an introduction to a lot of the tech talk on this web site. Once grounded, take a look at the 'Antibody Testing' section to see how far your docs are going in regards to testing.

Just keep in mind that many many issues neurological are never as clear cut as one would like to think. Never demand any specific test from a doc -they will be insulted and become defensive, just ask 'What about X?' And maybe say you read it from some credible web site such as the National Institutes of Health or Mayo Clinic or the like. Otherwise you could be dismissed as something of a hypochondriac or worse.

Another resource from the Peripheral Neuropathy forums is a web site called
Liza Jane.org which includes a whole slew of tests relating to lots of neuro issues.

Furthere, be sure to check out the 'Stickies' at the top of each forum's posts in both the MS and Lupus forums.

I hope this helps you find your way and a way to cope with it all 's - j
dahlek is offline   Reply With QuoteReply With Quote