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Member
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Join Date: Jan 2008
Location: Kansas
Posts: 971
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Member
Join Date: Jan 2008
Location: Kansas
Posts: 971
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Was originally dx, by Mayo Clinic in 2002, as likely having CNS Lupus, although they did not rule out MS. Over a year later, my neuro changed the dx to MS.
However, last summer, I began to see an MS Specialist, who wondered why the dx was switched. She re-did some tests, and concluded that, although my symptoms more closely resembled lupus, the tests appeared to back up the MS dx.
So, at this time, she is assuming that I have MS, and treating me for that. However, she continues to keep lupus in the back of her mind as a possibility.
Like you, I found very little information about CNS Lupus, specifically. For me, MS, as a more common disease, seemed less frightening.
~ Faith
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aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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