I'm sorry to get in here late.

I just thought I would add some thoughts from my experiences.

In 2002-2003 I had numerous lumbar sympathetic blocks, so many I lost count. Yes they ultimately lost their effectiveness but I did have a terrific summer and made it through my wedding and honeymoon in a remission like state.

AJ, if it is possible to find a doctor who can give you a continuous week long peripheral block as described in the article Mike posted you may have a chance at keeping this monster at bay.

I wish you all the best.

MsL