Welcome, Jayne! This is a great place for info, support, laughs, tears, and fun.
Sorry you're experiencing the frustration of not knowing what's up...been there.
I had fibro since 85, and began having neuro sxs in 04...finally was put on a DMD after sxs got in the way of living life...and lesions popped on MRI.
New neuro still won't definitively say MS, but MRI shows things that are "very typical" of the disease, so he's keeping me on the DMD, and working with me to control the symptoms without frying my brain, which my old neuro seemed to do with ease.
Good luck with finding out what's going on, and never give up!