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Old 06-22-2009, 08:50 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default more than I intended

I really didn't intend to do more than shake people free from the saccharine stuff they feed us in supposedly giving us hope. I think hope is vital, but when they pat us on the head and lie to us, that gives us false hope. And when years later it becomes clear to us that it was an illusion, then we have the funk that has been being released here. Far better that we were told that hope lies with being aggressive in those early years when it was/is an option.

A visit to one of the other forums (the big one) is enough to make me want to scream. They are all so full of hope. They've been Dx'd a couple of years and are happily waiting and comparing notes on the drug of the day. It's like observing a game of cribbage on the deck of the Titanic. I had just come from there when I wrote those words and, frankly, I would not have posted them there. They would not have understood and I would not have wanted to destroy their hope even if I see it as false. This is a tough one.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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DejaVu (06-22-2009), rose of his heart (06-22-2009), Thelma (06-22-2009)