I just signed the petition, and my personal experience letter is:

# 1,182:
8:29 pm PDT, Jun 23, Name not displayed, Oklahoma

I have RSD/CRPS I, a very painful, chronic neurological condition. I must have medication (24/7), to ease the horrible burning, stabbing, deep achy pain. There is no cure for RSD/CRPS I. I am 50 yrs. old, and I am disabled because of this disease. I am home bound and rarely venture outdoors because of this condition;specifically, I cannot walk or stand for any length of distance/time. I feel pain from any physical contact, as well as a breeze, or hot/cold weather. The weather change and/or stress bring on pain flares that have lasted over 7 days. I rarely sleep more than 4 hrs at a time. I have gone without sleep 72 plus hours because of pain flares.My life as an active person is over. Further, my Pain Management doctor has told me several times that I will never get better, but will get progressively worse, over time. The doctor told me that he could make me feel more comfortable with the chronic pain I endure 24/7. The pain medications I take do not take all the pain away. I still have pain on a 24/7 basis, however, the pain is dulled down because of the medications. I do not feel a "high" from the medications that I take on a daily basis. I follow the contract that I signed with the Pain Management doctor that I see on a regular basis. Finally, I have been diagnosed with Major Depression, Anxiety/Panic Disorder, and Sleeping Disorder by a psychologist that I see every two weeks. My diagnosis is RSD/CRPS I,also known as Sympathetically Mediated Pain Syndrome/Chronic Pain. I have also been diagnosed with Fibromyalgia.