Hi

Im going to answer the points as I remember them!

- No I dont have copies of the test results. Some were carried out where I live and others were carried out by the oxford lab.

- I haven't been tested for CMS but would like to be.

- I contacted Angela Vincent by letter last week, enclosing a disc with the video down loaded from my phone.

- Im going to be trying the National Hospital of Neurology next.

- I take between one and two tablets every four hours of Mestinon. Yes it makes a difference within an hour of me taking it and I can feel it wearing off depending how bad I am from 3 to four hours afterwards. It can make the difference between me shuffling to walking properly.

- At the moment I am struggling with weakness in my arms, to an extent which I have never had before. I can type this as I have just got out of bed. but my arms are shaking doing this.

- At present no problem with breathing.

Thanks for all your responses

Rach