iI was diagnosed with mg 3 years ago in july - i am on a large dose of mestinon 90 mg 4x's a day and 180mg long acting at bedtime . I have also had plasmapheresis for months which really did not work that well for me - as fast as my plasma was being replaced - was as fast as the mg levels came back. then they tried ivig which has helped me for the past year - my insurance company changed from united hc to aetna and aetna does not cover this because they feel that ivig is experimental in mg - this helped me so much - i was having ivig every 8 weeks for 2 days - i was even able to work p/t as a triage ob/gyn nurse again - my worse symptom is severe diarreah which i know is a side effect from mestinon - it is sometimes uncontrollable - i do take over the counter meds for this but sometimes it does not matter . i eat at least 2 bannanas a day - my mg when first diagnosed put me in iciu due to not being able to swallow and talk - the mestinon has helped greatly - i dont think without this medication i would be able to function - my eyes twitch and droop and most of the time if i take a picture even if i smile i look sad - i also have a big problem with my upper arms - it feels like lead to pick up my arms to blow my hair - and there are times that after i work i could sleep for days