Quote:
Originally Posted by Riverwild
PML has a pretty rapid course. It starts affecting the brain before anyone usually notices what's happening. That's why you have to be vigilant to any changes. Confirming it on MRI means the damage has already started.
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I need to correct this statement. PML actually starts out slowly. It is under the radar for a long time if not detected before it reaches the brain. It is when it reaches the brain that it starts to do the rapid damage that gets noticed, leading to MRI and diagnosis.
This is a link to another board where a person with PML has posted:
http://forums.wrongdiagnosis.com/showthread.php?t=49456
This person's experience is VERY compelling and a good warning for all of us on Tysabri AND for people searching for diagnosis because their signs and symptoms don't fit the norm.
If you are on Tysabri, be vigilant. Changes in vision, thinking and behavior are signs that something is wrong. You may be in relapse, but relapse isn't seen very often in people on Tysabri and the protocol is RULE OUT PML first before treating relapses with steroids.