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Old 06-24-2009, 07:02 PM
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SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
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Wow, River, that was heavy reading.. She wasn't ever on Tysabri, either. Rebif and copaxone and steroids were mentioned. From what she says, she feel that the combonation of those drugs is what led to her PML.

I tell ya, I hate most higher than the Almighty, Docs, who take it upon themselves to not delve into or divulge conditions effecting our bodies. If they had found her PML before it became fatal????????

My advise to all of you on any immune system depressing or modulating drugs is to stop them immediately, if you have a worsening of symptoms and get tested for the JV Virus.....Please..I think it can be stopped if found in time.

Thanks River, for bring this to our attenion.

I will be praying for this brave person..
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