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Old 06-24-2009, 08:43 PM
komokazi komokazi is offline
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Join Date: Dec 2008
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15 yr Member
komokazi komokazi is offline
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Join Date: Dec 2008
Posts: 192
15 yr Member
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Quote:
Originally Posted by SallyC View Post
Wow, River, that was heavy reading.. She wasn't ever on Tysabri, either. Rebif and copaxone and steroids were mentioned. From what she says, she feel that the combonation of those drugs is what led to her PML.

I tell ya, I hate most higher than the Almighty, Docs, who take it upon themselves to not delve into or divulge conditions effecting our bodies. If they had found her PML before it became fatal????????

My advise to all of you on any immune system depressing or modulating drugs is to stop them immediately, if you have a worsening of symptoms and get tested for the JV Virus.....Please..I think it can be stopped if found in time.

Thanks River, for bring this to our attenion.

I will be praying for this brave person..
Thanks River for the find. Don't be too hard on the Docs as PML was relatively unknown outside of the HIV/AIDS community until it's gained more visibility lately due to drug induced PML from a plethora of different immune system targeting drugs.
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"Thanks for this!" says:
SallyC (06-24-2009)