Quote:
Originally Posted by SallyC
Wow, River, that was heavy reading..  She wasn't ever on Tysabri, either. Rebif and copaxone and steroids were mentioned. From what she says, she feel that the combonation of those drugs is what led to her PML.
I tell ya, I hate most higher than the Almighty, Docs, who take it upon themselves to not delve into or divulge conditions effecting our bodies.  If they had found her PML before it became fatal????????
My advise to all of you on any immune system depressing or modulating drugs is to stop them immediately, if you have a worsening of symptoms and get tested for the JV Virus.....Please..I think it can be stopped if found in time.
Thanks River, for bring this to our attenion.
I will be praying for this brave person..  |
I have been concerned for the people who have one episode of "something" and are put on the DMD's when the diagnosis has not been made.
The drug companies have pushed this scenario to make more $$$ but it may be a real killer for those that start one of the abcr's and yet have another disease. We sometimes have people write about their own experiences of taking one of these drugs for years only to find out later that they never had MS.
This is horribly sad for the woman and heartbreaking for her family. Maybe she will help others who read her story.
gmi