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Originally Posted by Natalie8
I find this story to be very confusing. I thought PML was a very fast moving disease that brought death or disability very quickly. I am not aware of copaxone and steroids causing PML, although I guess she is saying she already had PML when she went on these drugs? But again wouldn't it have moved and multiplied extremely fast? There seems to be something missing here in the story. HIV? Other immunocompromised disesases besides Hashimotos? Is there any way this story can be verified? Whatever she is suffering from it sounds very sad.
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Natalie,
I corrected that statement under the post about the last PML patient. It seems that it is a very slow course until it reaches the brain and becomes noticeable.
This person seems to be saying that she had PML and was misdiagnosed. It's possible her immune system was fighting it and that by adding in the drugs she was on, it reduced the effectiveness of her immune system's fighting the disease.
I wonder if that's why they find JCV in blood tests of patients and NOT in CSF, because their immune system is fighting it or keeping it in check?
There's just so much we don't know yet...
I'm on another search for information for this now...
