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Old 06-25-2009, 05:11 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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When you close one eye, does the blurriness and double vision go away? In MG, the muscles around the eyes get weak to varying degrees. When muscles are weak, the focus of the eyes is different. One eye can be completely different from the other. But when you close one eye, voila, you have good vision. That is typical of MG, called binocular vision.

Each of the acetylcholine antibodies do different things to damage the neuromuscular junction. There was a past post that had good info about this. The fact that you had positive binding antibodies basically means you have MG. Sometimes those antibodies can pop up in a few other conditions but if you have a clinical presentation that looks like MG and antibodies, chances are you have MG.

This is a great website.

http://neuromuscular.wustl.edu/

I explained the MG/heat thing in your other post.

I understand you wanting to go to your ophthalmologist, because you probably trust him. But he is still not the appropriate doctor to help you. You need a full-fledged neurologist, preferably a NICE MG expert. Dr. Barohn is very good. If your ophthalmologist can refer you on, that's great!

http://www2.kumc.edu/neurology/barohn.html

I hope you can get diagnosed. Just be as nice as you can to your docs! I know that sounds stupid but neurologists tend to not be the nicest of doctors. Good luck.

Annie

Thanks, Abasaki for the thanks.
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"Thanks for this!" says:
scarpettafan (06-25-2009)