Thread: Anyone have Multifocal Motor Neuropathy ??
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Old 06-26-2009, 12:22 PM
rbpug rbpug is offline
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Join Date: Jun 2009
Location: Salt Lake City
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10 yr Member
rbpug rbpug is offline
New Member
 
Join Date: Jun 2009
Location: Salt Lake City
Posts: 2
10 yr Member
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Originally Posted by Braveheart07 View Post
Hi,

I am new to this post----just wondering if anyone has had experience with Multifocal Motor Neuropathy with Conduction Block and what has worked for you. I am scheduled to receive IVIG therapy soon, and am curious about that as well.....Any info. would be greatly appreciated..
Thanks !! Doug
Doug, I've had MMN since 1995, and have been on IVIG since 1997. I'm still working full time and living a fairly normal life. I was an active marathon runner when I was diagnosed so I have given some things up. I recieve a "treatment" every 12 weeks and this is crucial to my well being. As a veteran of this therapy, I would be happy to answer any questions you might have.
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