Quote:
Originally Posted by Riverwild
Natalie,
I corrected that statement under the post about the last PML patient. It seems that it is a very slow course until it reaches the brain and becomes noticeable.
This person seems to be saying that she had PML and was misdiagnosed. It's possible her immune system was fighting it and that by adding in the drugs she was on, it reduced the effectiveness of her immune system's fighting the disease.
I wonder if that's why they find JCV in blood tests of patients and NOT in CSF, because their immune system is fighting it or keeping it in check?
There's just so much we don't know yet... 
I'm on another search for information for this now...  |
I'm also unclear on this patient's medical history, as described in her expansive accounts. I think it's important to judge anecdotal accounts by patients, delivered over the Internet, with some degree of caution. Not to say that such accounts are all flawed or intentionally misleading, but patients are not themselves always 100% clear on their own health care matters.
What disturbs me is her assertion that doctors chose not to inform her immediately of her PML. The notion that doctors hide information from patients or are reluctant to give them bad news is just
wrong.