Quote:
Originally Posted by girija
Hi,
It is a great agenda for the meeting. I just have a few suggestions
How many PWP would be attending this meeting?
If its a small number, a couple of morning sessions of "breakfast with a speaker" would be nice. 15-30 min of time, one or two speakers with 4-5 PWPs.
I suggest : Patient posters spread out all three days of the meeting.
One or more booths where PWP are available if anyone is interested in chatting.
and to share any information we have,
May be a registry of patients willing to participate in clinical trials???????
girija
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We are hoping for a few thousand patients, but we still hope to have early morning sessions.
Yes - posters will be there for 3 days at least.
There is going to be a Renewal Room like last time with Patient Advocates on duty to hand out practical and experience-based advise to others. This will be the place for PWP's to meet to chat.
As for the registry - a matter close to my heart - it's a good idea to enlist people at this event. We (The Cure Parkinson's Trust) have recently applied for a $1mill grant to set up a database which will cover this and many other uses of PwP data.
Tom