Quote:
Originally Posted by erinhermes
Hello all! I'm going to call my neuro 2morrow to ask about plasma exchange........if you know me @ all, you know how scared I am about it, but I really think I need a BUMP to help me!
I'd love to have my IV IG again, but I had it for 5 months straight and thought that I would be "good to go"for a while, but I guess it wasn't meant to be......
I'm just so darn upset about this whole thing! I will be doing great and then *bam* out of no where I get hit with the whole weakness thing or get sick and I'm back @ the hospital........
My left eye is always my indicator that things are going downhill - fast! It gets weak and hurts like heck, and then I am weak (again on my left side) - regardless, when my left eye goes wonky, it means that I need something quick!
I've already packed my bags, b/c if I have the exchange I have to stay there (hopefully Dr. I will request a private room so Mike or my mom can stay with me - the hosp really scares me)
On the positive side, if I DO go in, I'm taking my little portable fridge with me to store my tea, milk and juice - I bet the nurses have never seen that one before !
I really hope he lets me get away with a huge boost in my pred, but I really think I may need to go in for a while and get my oil changed........
Those of you that pray, please do so! I am TERRIFIED about the exchange! It just plain sux!
Erin
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Erin,
Praying hard for you my friend!
Simon