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Old 06-29-2009, 11:08 AM
uksteph uksteph is offline
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Join Date: Apr 2007
Location: Dalton,GA
Posts: 5
15 yr Member
uksteph uksteph is offline
New Member
 
Join Date: Apr 2007
Location: Dalton,GA
Posts: 5
15 yr Member
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I was diagnosed with Intercranial Hypertension, also called Psuedo Tumor Cerebri in the spring of 99. No one really knows why someone gets PTC. Different doctors have different theories for why someone develops PTC. The cause of my PTC is thought to be the genetic blood clotting disorder I have. I had a great many problems with getting the right meds to treat the PTC. The "normal" course of treatment is Diamox and sometimes a combination of other meds. My treatment is Lasix, Vivactil and Zanaflex at night. Rain, thunderstorms and heat does affect the headaches. I live in North Ga. USA and we have had alot of violent thunderstorms this year and they do a number on me.

Do a web search for the Intercranial Hypertension Research Foundation. They have alot of helpful information. I don't have enough post to post the link.

Let me know if there is anything else that I can help with. I know this disease can be a royal pain.

Stephanie
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