Hi Cathy,

WELCOME TO THE NEUROTALK FORUM COMMUNITY!

No, it is not unusual to have you diagnosis changed even after years.

In my case I was five and a half years SPMS and then this last April they decided I never had MS and have not come up with a fitting diagnosis. I'm also on SSDI since 2003. They feel my disease(s) may be genetic and that I may be the first in my family to exhibit symptoms. So I don't know what to tell you.

We're all just stuck here in Limboland until they get their acts together and can figure out what is really going on with our bodies. Although the neuros will admit, they don't know everything nor do they have an answer for everything.

On your situation, it doesn't sound that unreasonable to have both only MS would cover more of the symptoms you have probably experienced. It's not a death sentance and you will be able to easily work through many of the challenges of MS and live a normal lifespan.

Good luck to you and please keep us informed.