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Old 06-30-2009, 04:26 PM
Sasha Sasha is offline
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Join Date: May 2007
Posts: 206
15 yr Member
Sasha Sasha is offline
Member
 
Join Date: May 2007
Posts: 206
15 yr Member
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DBD and Debi -

One attribute of Neurotalk seems to be that there are as many opinions are there are participants! I think the web site looks great, Debi - very interesting - of course, multiple sources, separately or pulled together, beats one perspective...as for the movement disorder specialist, I have reputedly the top person in the area but he is too busy and important to have any but the most cursory interest in his patients. I find that having read a bit first helps me focus in on what seems really important to me and break out of the confines of his clipboard questionnaire. And he responds really well to this. Before, he rattled off 15 stock questions ("Constipation? Hallucinations? Falls?") and was out the door with no discussion. Now I get charged for extended visits, but I have the sense of having connected. Web sites are still more informative, in my book. My doc just doesn't have the time and relationships aren't built in 15 minutes 2 times a year.
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