Fiona,

Of course! If pwp don't support the topic of a trial - then they shouldn't participate.

But there are many clinical trials out there that i support. For instance earlier this year my husband & I participated in a trial sponsored by the PSG -- the goal was to identify biomarkers for PD. Earlier this week the trial center called me to say that the PSG is working on a new biomarkers trial - i told them we'd be happy to participate again.

Fiona said:
There are so many concrete issues to address in Parkinson's - I think it totally matters where people put their energy, whether on the researcher or volunteer side.

And I totally agree with you! But what is important to me may not be important to you.