I can say that I am sorry for your plight. I can say this....get a second opinion for sure.... As a nurse I see this kind of surgery all the time....and I see them post and pre surgical. I also know at my hospital some surgeons are better than others. Ask around and find the best....I would even suggest touring the hospital and talking to the nurses...we are in the know!
I also see people with liver transplants and liver failure. If avoidable...don't do it. But at the same time I have seen life changing results from people getting transplants...and they do great!
We actually have a couple nurses that I work with that have a bag, and they lead normal lives and even have children. I guess it is a matter of weighing your options.
I do want to say that my heart goes out to you and that most of the docs and nurses I know are caring and understanding so after the surgery AND before make sure not to be afraid to have all of your questioins answered. You can even ask to see someone who may have had it done and talk to them. I know at my work we have a support system for that. You could get to know the real life skinny about what to expect pre-and post hospital.
Lots of love,
Feel free to pm me if you have and technical questions and I will answer them to the best of my knowledge.
Jennelle
Quote:
Originally Posted by msdrea83
I have to have a pretty big surgery on July 17, an ileostomy- where they remove part of my small intestine that is bad and reconnect it to my side and i'll have to wear a bag (pretty gross and so not looking forward to it). I have also had cirrohsis of the liver since i was a little over a year old so this kinda complicates things, as well as having a colectomy when i was nine (full removal of my large intestine). Because of my liver i have developed varacies (areas in my spline and esophogus that are problimatic for serious bleeding), I haven't had any problems with these since i had the colectomy at which point the ones in my esophogus burst and i threw up a pint of blood (EW). so i saw a heptologist so i could get an ok for the surgery and he gave me a 25% chance of going into liver failure and mortality rate. but oddly enough that doesn't really bother me as much as the possibility of having the surgery and possibly having the rsd spread to my abdomen/internally.
any body have any suggestions of preventative drugs/injections i should ask for while in the hospital? i have a pre anesthesia appt in about 2 weeks and i'm going to ask to get ketamine as part of what they use to knock me out. figure i might as well try to get a k infusion that's gonna be covered by insurance while i can. since its put me in remission i don't see why it wouldn't prevent me from spreading... but if the anethesia doc doesn't go for that i'm very open to other suggestions.
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