Hi Fouf,

I really enjoyed your description of MS as I too can totally relate to it!

I don't have MS but have a condition that is very similar in many ways called Complex Regional Pain Syndrome (CRPS/RSD). I developed it when I was 12 years old and am now 14. I was told by my Doctor and Neurologist that MS and CRPS are thought to be the most closely linked neurological condition known at the moment.

When I am describing my CRPS, I often tell people that I feel like an hamster on a wheel; spinning around loads but never moving anywhere. I also tell my PTs and Doctors that I feel like a fire man who has to send his fire bregade out to treat a fire as whenever I develop a new problem, it seems to wreck my entire body.

I'm sorry that you are having to deal with this also! I understand how lonely it can get dealing with such an awful condition so if you ever need/want someone to talk to, please know that I am here for you!

Alison