Jenna, I'm pretty much the same as you. When I was doing well, I was taking 60mg every 3 to 4 hours and 180mg timespan at night. I've been taking 60mg every 2 to 3 hours with the timespan at night most recently. My doctor just increased it to 90mg every 3 hours with the timespan at midnight. We also settled on IVIG once per week and I take CellCept.

By the way, as an update, I had posted about a month ago asking if people could work full time. I have been out of work since the first of April on short-term disability but had hoped to be back at work by the first of July at the latest. Oh, well, it didn't happen. My doctor has said no and the disability was extended. It doesn't matter, I couldn't have done it anyway yet. But I am beginning to feel a little better as long as I keep things slow and behave.