This is a great project, well suited to the talents and resources available, unlike prior data base projects that need additional resources to do effectively. For example, I am writing proposals to fund development of personal health records However, I hope to start the design of the PD diary before getting funding.

I was a contributor to Linda's book, as a participant on the Univ Toronto PARKINSN listserve, and recently several of us have been encouraging Linda to update her excellent book. As Linda has indicated, the project was more difficult than imagined initially, with many revisions, not unlike any writing project. But it was well worth the effort and something to be proud of, and ]n my opinion, It provides a window on the world of PWP that only we can provide. I do not think I need to be on the central writing group, (you seem to have a talented group assembled. i will offer my posts on this forum which are few and the previous Brain talk forum, where I wrote more.

I will go a step further to offer some of my emails to address the topics that I have the most contact with, most likely the issues relating to the application of web technology to political action, and advocacy generally that have germinated in ths forum (including braintalk). My friend who is dean of information sciences at the Univ of Maryland has written about on-line communities as an academic subject. WE have been doing just that, creation of online communities, with no prior experience. I would think no matter what positive or negative influences that the Pipeliners have had, it was a result of this forum, that this group existed and continues to exist. A significant group of the active participants of this list have been official pipeliners, and many continue to be, so for better or worse the ppp is a product of this forum... a subplot of interest that should be told

In sum, an important audieence for this book, in addition to medical people will be sociologists and information scientists, and we should go beyond the posts to fill in gaps as Linda did and tell the whole story.

Perry