Thread: My Journey!
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Old 07-03-2009, 02:15 AM
ConnieS ConnieS is offline
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Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
ConnieS ConnieS is offline
Member
 
Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
Default Test results!

Hi Dear, they have sort of given me two possible diagnosis, one of which is ALS, and one's MND. They're both similar, in the sense that they both seem to be fatal and progressive. MG sounds like a much better autoimmune disease to have, but the neuros seem to have crossed it out. I'm now back home, after more than a mth in the hospital. When the docs told me it could be ALS, I was kinda numbed, and had lots of questions racing through my mind about 20mins after that. Lol. Am still pretty optimistic about everything, not thinking too much about it. After all, they still have to monitor and see as its quite a grave diagnosis to make. So am keeping my fingers crossed and hope that I get better with the tonnes of vitamins i have to take!!

Quote:
Originally Posted by erinhermes View Post
Hey hon! I am sooooooooo glad to hear you are finally being treated PROPERLY! AMEN! That is such great news!

I know I say this over and over, but I have a feeling 09 is going to be our year! I FEEL it!

I bet you are so excited to finally be treated RIGHT! I hope it's MG, too b/c there are many other autoimmune dieases that are truly scary - I am Not down playing MG in any way - not @ all, but we can lead somewhat normal lives with meds! Plus, lifelong remission is POSSIBLE! Isn't that amazing?

Let us know how your tests go!

I will be praying for you!
Big hugs!
Erin




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