Hi, Sharon, and welcome to the community! I have no personal knowledge of hydrocephalus, but we do have a special forum here dedicated to it. Here it is:
http://neurotalk.psychcentral.com/forum14.html

Sorry you have to be here, but you came to a good place. You'll find lots of support, and we have some "fun" forums, too. So jump in anywhere! Feel free to share a little about yourself, if you feel comfortable doing so, so we can get to know you!