Hey all. This is from such a long time ago. So much has happened since this thread I have no idea where to begin. I have seen countless specialists and pain docs since this. I have rsd and peripheral neuropathy but what my current pain doc feels that the rsd is causing most of my high pain. I had a lumbar block and lidocaine infusion which made me worse so before a scs he would want to do a blockade because if that made me worse the scs could as well. Right now I have went back on many of the meds like neurontin etc and waiting to see what happens with that. I finally found an anestesolgist who is willing to work with me after many like at Cleveland Clinic it was there way or the highway. My condition has spread to both legs and I have suffered also from a severe eye issue that had me at 40 plus eye apts and I would say 11 specialists for that. My leg pain is still very high but I am able to do a lot more physically. My mental state from when I came here is a lot better since I have been working with a psych. I am a nightmare case due to my age,history,and that I don't respond to the invasive treatments and many meds.
What I have learned through this is that like at UCLA I was given a video on the scs and he sais that is what I need and would only do that. There were many less invasive treatments to try first and he did not even listen or answer any ?'s. I am big on 2nd,3rd etc opinions because of docs just rushing into things or making mistakes. At the start of this they wanted to do tts surgery on me but that is not what I have and also should be one of the last things regardless to jump into. It is scary and frustrating and I have had more mri's,emg etc to rule out other possibles.
Just trying to take 1 day at a time and hope for a better future that is less pain and can regain a young person's life.
Thanks all and feel better to all