Quote:
Originally Posted by Dejibo
Would this force them to pull me off this drug? I have failed out on the interferons, as they make my liver VERY unhappy. I think I have wanted to come off copaxone for a long time now, but somehow, I dont want to quit. If I am going to come off, I would be a lil scared, as I have nothing left to fight with. I am NOT a candidate for LDN, and I am too afraid of Ty. So, I would have to stick with my diet, and exercise, and suppliments.
Has anyone been pulled off Copaxone for dents? They do seem to be deeper, and larger by the week.
Advice?
|
I went off of Copaxone primarily becuase of the dents in 2007.
My thinking was this: I haven't had an exacerbation (that I know of) since initial diagnosis in 2001, I can take a break from Copaxone - see how it goes - and maybe get back on the some sort of therapy when the 'next drug' makes it way through the pipeline.
I didn't want to keep denting myself without knowing for sure it was helping me and deterring the course of this disease (because it sure was altering the shape of my body!).
I haven't had any additional exacerbations so, do not regret the choice to stop Copaxone. My doctors were in support of the decision actually, so long as I indicated to them I'd be willing to revisit the drug discussion should my health take a turn for the worse. They agreed that each of the drugs available now exact a cost on our bodies and the big picture (i.e. my sense of well being and day to day experience) was most important for
me. And again, you can always go back.
Does that make sense?