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Old 07-08-2009, 10:04 PM
diagnonsense diagnonsense is offline
Junior Member
 
Join Date: Jul 2008
Posts: 90
15 yr Member
diagnonsense diagnonsense is offline
Junior Member
 
Join Date: Jul 2008
Posts: 90
15 yr Member
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Thanks to Fran I've decided that I am not going through with the nerve biopsy unless I get general anesthesia!!!!

And if my insurance won't give me general.. then I won't go through with it.

I'm done with painful procedures.

I'm pretty sure I actually have CIDP, or one of the varients called MADSAM.
Its a primarily sensory variation.

I was certain I had CMT until stupid me figured out what a conduction block was. *DoDO*

NE way.. since CMT a person need not have a conduction block and I have more than 1.
(even with clear spinal fluid)
And since CIDP persons can have clear spinal fluid, it just makes diagnosing harder.. I'm going to have to go with that one.

How do I get the diagnosis without the nerve biopsy?
Cause I do need treatment.

Blach, I really hate all this diagnosis crapola.
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