My neuro is starting me on 500 mg of CellCept 2 times a day. He didn't mention having my blood checked regularly, but my pharmacist said I should have it monitored. Do any of you have your blood tested because of CellCept use? My neuro said if I was taking Imuran he would have to monitor me for changes to my bone marrow. Thank God I have good insurance. I only have to pay $20 for a months worth of pills that are valued at $500.

I'm kind of scared because of all of the things I read it could cause including lymphoma. Apparently it also must make you more likely to get sunburned because many of the warnings talk about wearing sunscreen.

I was already taking 90 mg Mestinon every 4 hours. My neuro wants me to decrease that. I do not take Prednisone which I think many people who post on here do take.

I saw my neuro today, the last time I saw him was 2 months ago. I told him I wanted to see how things went while I wasn't teaching. I told him I wasn't any worse and he replied he was not happy with that. It has been 11 months since my thymectomy and he believes I should be in remission and not experiencing any problems. My eye droops once in awhile. When walking up steps I am short of breath and it is hard to breathe. This week I went on a 4 mile bike ride with my kids. I was exhausted afterwards, but was not worn out from it the next day.

I am supposed to try the CellCept for one month then check back in before I start back to school in the fall.