Originally Posted by jackie66

I too have cerebellar ataxia, and a recent 3T head scan showed slight shrinkage of my cerebellum. I was lucky enough to get referred to one of only two ataxia clinics in the UK. The Doctor there is a specialist in the SCA types and especially the gluten effects. the damage to my cerebellum and brainstem have caused total paralysis of all the back muscles from the neck to the knees-- both motor and sensory. I now get about using my calf , front thigh, abdominals and chest muscles. This Doctor also diagnosed that my vitamin E levels were low -- that is another thing he looks for in ataxia patients