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Old 07-09-2009, 10:39 AM
pabb pabb is offline
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Join Date: Sep 2006
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15 yr Member
pabb pabb is offline
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Join Date: Sep 2006
Posts: 779
15 yr Member
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Quote:
Originally Posted by littletsunshine View Post
Ok so I have had symptoms for most my life. I was always told it was in my head. Digestive problems, joint pain and inflamation, loss of range of motion in my joints, skin issues(unknown undiagnosed rashes), osteopenia, kidney issues(swelling for no reason, pain, eventually cleared after a stent placement but no stones) and even had sinus tachycardia that randomly went away on its own, ohh and dont forget the mental illness(supposedly bipolar but the meds dont work and after 10 years found nothing to help even experimental drugs, heck most the mood stabilizers made me hallucinate!) Been more stable for over a year off meds than I was on them!

A couple of weeks ago my newish primary care touched on something he thought might be it. He thought I had celiac disease, all the blood tests were positive but just found out today that the intestional biopsy was negative..ohh and of course put me on nexium cause of esophogeal errosion and sent me home with a picture of it. Yey thats gonna solve all of the above. The joint problems are bad enough we had to get me a wheelchair which of course Im not well enough to power myself. So now unless Im having a good day, someone has to take me around. I cant even get out of our place alone. Loosing hope and patience. At least from what the dr had said Celiac I could get some assemblance of a life back. Now only left with pain.

Any Ideas what this could be?? Help I can not live like this. I shouldn't be incarcerated at home im only 31.

Been tested for Lyme, Lupus, RA, and Celiac

DX with fibromyalgia(think the rhumatologist dumped me in that category cause he didnt care to try to figgure it out, doesnt even treat that!)
YES I AM SCREAMING AT YOU! THOSE TESTS ARENT POSITIVE BY ACCIDENT!
as glenn has said, sometimes the damage to the intestine is spotty enough, or the technique is bad enough that the lesions are missed....if i were in your place, i would begin a gluten free diet IMMEDIATELY. you do not need a dr. permission to do so,,,, i know that if you are in a country that will give you a subsidy for food you need the dx, but is your health worth that?....please act now
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