I was just stating how I have lost family and friends to this. It hurts a lot but I try to focus on the people like mom who do support me and are there through every up and down. I too before did not open up about my health. Now I have more and though some try to fix who have no clue and some run away I do feel with certain people it has made our bond tighter. I think stating even if they don't understand what you need and what helps or not. Well sending thoughts.