Hi - Fran here again - I get IVIG here in Canada even though I don't have a diagnosis. I go once a month for a full day (6 hours). I am not sure it helps as I continue to deteriorate slowly but I like to think things would be worse if I didn't get it!!! The cost is astronomical so I am very lucky to not have to pay or worry about insurance etc. I know this doesn't help you however.....
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Originally Posted by diagnonsense
Thank you greatly Kitt.
The only problem with getting treatment is that it isn't FDA approved. (IVIG)
So you need a diagnosis, which is where the nerve biopsy would step in.
And I'm leaning towards not getting it done.
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