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Grand Magnate
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Join Date: Aug 2006
Posts: 4,440
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Grand Magnate
Join Date: Aug 2006
Posts: 4,440
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Hi lynxygal, I know that I would never, ever have a nerve biopsy. A skin biopsy is much less invasive. Of course I don't need that either. Dr. Michael Shy from Wayne State University is an expert on CMT and research. He said that a nerve biopsy is not what is done. It would be a skin biopsy if needed.
I would never have a spinal tap either (epidural) because you can have greatly enlarged nerves which are called onion bulbs. The anesthesiologist has to be very aware of the fact that you have CMT and what that really means. They are not exactly a breeze either for some in the general population. Case in point - a gal (non-CMTer) in town had had one when she had a knee replacement. All went fine. The next time when she had the other knee replacement, same anesthesiologist, they almost lost her. So a person never knows.
My friend's daughter had a nerve biopsy because the doctor wanted it. This is a few years ago. It really was for the doctor's benefit. My friend told her not to do it but she did and she has been sorry that she had it done ever since.
Please keep us posted as to the results you find out. Thank you.
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Kitt
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"It is what it is."
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