Hi Kate and welcome. I'm sorry to hear you're having to get on the neuro merry go round! It's so frustrating, but Annie has given you some wonderful information!

One thing I'm wondering, Annie, is about the one sided weakness. That doesn't fit real well with my understanding and experience of MG if it's a really pronounced, obvious difference, does it?

Kate, two things I've learned on my merry go round trip is that 1) some neuros love to jump to depression if they can't find the solution elsewhere, and 2) there are SO many different conditions that can cause the same symptoms that you really have to find a GOOD, knowledgeable and dedicated neuro.

You mentioned the search for MS, which I have been going through for years! The way yours has come back and much of what you're saying about your symptoms sound eerily familiar to me. I was clued in to the possibility of the shingles or another of the "herpes" family going into the central nervous system, and when my GP put me on anti-virals for a rash I had, it made such a difference in how I feel! Have you ever had a high fever illness that defied diagnosis, or had shingles? MIne is actually the cold sore virus, but a blood test can show if you have the antibodies for the Herpes family - there are several of them. At some levels, they just demonstrate that you have had the virus, but at very elevated levels it demonstrates that the virus is active.

Just a thought - it's such a easy, fairly safe treatment too, if that's what it turns out to be. I'm getting ready to have a spinal tap to check for all the viruses in the CNS next month and will post the results when I get them.

Good luck to you. I hope you get enough information from all us here to help you find an answer relatively quickly, although you have already been dealing with this for too long!

Feel free to PM me with any questions you may have on my illness if you like. I have to warn you that I am back to work full time and don't make it on to the forum nearly as much as I like (that's why the PM may be best if you have any question for me), but I will check in as often as possible.

Big hugs to you!