Hi CKitty,
Welcome to the group! Well as you can see by all the wonderful responses, you've come to the right place. Having a great neuro you can comfortably communicate with is key. Write down your questions & concerns and take them with you to your next office visit. Any new changes, call him/her and let them know. Rest whenever you start to feel fatigued...even a short rest may help. Don't get over heated and cool down quickly if you do. Everyone is different with this disease and as you go a long you will learn what works best for you. We all know too well how frustrating it is not to be able to do all the things we could before this wonderful disease. After 10 years I still on occasion take on too much and the MG wins everytime. Take care and we are all pulling for you.
Hugs,
Pat