 |
Senior Member
|
|
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
|
|
Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
Hi LindaR!
Hello and WELCOME to the best site on the net for MG! You are going to LOVE it HERE! EVERYONE is so kind and always willing to lend a sympathetic ear.......
As for the plasma exchange - I am not a big fan. My blood pressure drops low 80/40 last week - nurses woke me up in a panic....and I don't get the BUMP that I get from IV IG. That (for ME) is the best of the best.
THe first time I had IV IG it was like a MIRACLE! I felt so amazing that I cried and cried! It is truly great stuff! Gives you a boost like nothing else!
That being said, how often do you have the exchange? If it is often, you MAY want to consider a PICC line for IV IG - long IV that reaches just above your heart that casn stay in for a year - per my dr - as our veins havea tendency to "blow" when we are on meds.........
I would pick the IV IG anyday over the other. I just had the exchange done last week and am only now starting to feel the effects......
Hope this helps!
Erin
Quote:
Originally Posted by LindaR
Each time I have a plasma exchange, I crash. My blood pressure goes so low that they sometimes cannot even take a reading and its horrific. Doesnt matter how slow it is done or taking lots of fluids - it still happens.
Does this happen to anyone else?
I am trying to get my neuro to try me on IVIG to see if this is any better?
Would love any feedback on either the plasma or IVIG
Thanks - linda
|
__________________
Erin
.
|