Thread: Confused
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Old 07-11-2009, 04:39 PM
Ckitty60 Ckitty60 is offline
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Join Date: Jun 2009
Location: East Coast of Virginia
Posts: 54
10 yr Member
Ckitty60 Ckitty60 is offline
Junior Member
 
Join Date: Jun 2009
Location: East Coast of Virginia
Posts: 54
10 yr Member
Talking Ras 1256

Thanks so much for your reply. The gray area in my vision lasted for several weeks then finally went away. I have not seen or been referred to a neuro opthalmologist. As I understand it that is not consistent with a TIA. There should be no lasting effects from one TIA, right? You can have lasting symptoms from several TIA's. Here's the thing, I have passed out before from low blood sugar and this felt different than that. When I had passed out from low blood sugar twice before everthing seemed to close in on me and go dark. This time everything seemed to fade all at once, not close in on me. I don't know if that makes any sense. Before this happened I had been having this problem that is hard to describe. I ended up having a CT angiogram because of it. When I would look up not always but most of the time, my head would start to throb and my hearing would start to fade. I would describe it this way. When you see someone in a movie portrayed as though they are going to pass out they begin to fade sound into the background. That's what would happen to me. I wonder if I was starting to pass out - I don't know. But this also happened often when I would get out of my car and start to walk into a store or wherever or after sitting for a period of time and then after I had walked a distance. By the time I would get into a store I would have to stop and stand completely still and not talk. If I was with someone I would just say, my head is doing that thing and they would understand. After a couple of minutes I could start walking again. The doctors ruled out simply a change in blood pressure and were concerned about subclavian steal syndrome. Once when it happened I just kept walking to see what would happen. I started to see stars and it triggered a migraine. I had to leave the store and go home and rest. The vascular surgeon said to never do that again. Here's the thing, ever since I have been on Topamax for the parasthesia and tremor the problem has stopped. After that day at the office I had two other epidsodes when I felt the same way again. With every one of those events my eyes felt weird. Before I was diagnosed with MG I would say that my eye sockets feel tired which would make sense with MG, right? Since I have been on 100 mg of Topamax am and pm I have not had a nearly passing out episode either (as in the three events where my eyes felt weird and I everything faded) and as I said before my head has not done that weird thing. My eye sockets still feel tired when I get too tired even with the Mestinon and Imuran. I feel the parasthesia on a mild level every day but the Topamax has really, really helped from the very first dose. Any insight? Hope you are having a good day. Thanks so much for your help.
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