Quote:
Originally Posted by LindaR
Each time I have a plasma exchange, I crash. My blood pressure goes so low that they sometimes cannot even take a reading and its horrific. Doesnt matter how slow it is done or taking lots of fluids - it still happens.
Does this happen to anyone else?
I am trying to get my neuro to try me on IVIG to see if this is any better?
Would love any feedback on either the plasma or IVIG
Thanks - linda
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Linda,
I have never had a plasma exchange but have been having IVIG since Oct 08 and it works for me. I had five treatments the first week in Oct 08 and after the 3rd treatment, I was outside cutting a tree down in my yard where before I could barely walk and pick anything up. What a boost in strength. I don't advocate cutting trees down though, as I paid for my heroics, but I had amazingly more strength after just 3 treatments. Maybe your neuro will try the IVIG's for you. Keep the faith and let us know how you are doing.
Hugs,
Simon