How many out there have been diagnosed with RSD and then down the road had another doc state no its not!???? I am so confused and down. Background info: knee replacement 12/07 - knee manipulation 3/08 - diagnosed by ortho and pain management doc with RSD 4/08. Had open debridement of knee 11/08, diagnosed with MS 3/09 and then diagnosed with ankylosing spondylitis (form of rheumatoid arthritis) 6/09. Ugh.
My knee is still so swollen and painful thought I would try another pain management dr my primary care dr suggested to try to get some sort of PT going again. Instead - these drs stated that they don't think I have RSD and want to "temporarily freeze" the nerve in my thigh. They think I have a compressed nerve due to the tourniquet used during the knee surgery. They want to freeze this nerve 2-3 times. But, they won't tell me what to expect as outcome.???They also would not give me reasons as why they don't think its RSD - just stated they were "highly suspicious" it wasn't. I almost feel like they thought I was imagining the pain and symptoms I have. The drs also stated that they don't want to tell me how this would improve my condition as I might imagine it! I felt like they would almost give me a placebo just to see how I react. I went to this University (I wont name) which is well respected in hopes of finding help for moving my leg but got something new to consider. I have had 3-4 different drs look at my leg and none suggested otherwise than RSD. Have you had drs turn the diagnoses around on you - and if so - how did you cope and what did you do? I have had so many things hit me the last 2 years - and I just don't feel right about this. But then, what if they are right...?? ARRRGG. Thanks for listening.