lindkaye,
Get ALL of their "notes" and reports in writing from them, and ask, so that you can make a good decision. You deserve this. Anyone in this much pain deserves this. Just call, and ask that it be mailed.
Along with their suggestions for exactly why they want to do, exactly what it is, that they want to do, and why, it's NOT RSD..

I can pretty much promise, that you'll get nothing in the mail. (If you have a fax machine, all the better!).
Ask for it to be FEDEXED! Push hard! And, call every day, until that secretary says, it's been fedexed, then you can get a "tracking" number! Or, if they're close, tell them you're coming in for your records! Don't let them say no!

Push them!
And, if they don't answer within a week, write them, certified, return receipt.
You'll soon get to know how certain they are of their 'diagnoses".

I'm sorry.

When you "just don't feel right"... then something is wrong! (TRUST YOURSELF!)
Don't go with it!

Still, the point boils down to, you've already decided, (reading your note, between the lines) that you have NO faith in these doctors, or their diagnoses.)

I agree with your feelings, btw!

So, you may as well start searching for an RSD doctor.
(ask these guys how many RSD cases's they've treated, and how many "successfully".)
(none are treated to curation).

Lindkaye,
You've still got a little ways to go.
Just to find a doctor, who will respect you, and the disease.

Get up, and get to work!
Do it early in the morning, then crash.
Change your schedule if you need to.

Just DO IT!

You're in one of the most difficult stages of this disease, (if you truly have it)...
And, you can't fake it.

So, my advice is, Carry On!

(ON YOUR SIDE!)

Pete
Asb