I have been on 2 intense Physical Therapy Programs at Great Ormond Street Childrens Hospital in London (England) which lasted 3 weeks. I had Physical Therapy from 9am to about 3.30pm, 5 days a week.

It was extremely painful and probably one of the hardest things I have ever had to do but the first one helped me and allowed me to walk short distances again (I was fully wheelchair bound before that). The second one however, didn't work at all and I think it made me a little worse if anything.

I still have excrutiating pain every day as well as all of the other symptoms of RSD and Dystonia but it's made a difference to me being able to walk. I can only walk very short distances but even being able to potter around the house is better than nothing. If I am going out in public, we have to take either my wheelchair or crutches most of the time - though I try and walk for as long as I can.

My PTs wanted me to go onto the PT Program again to try and get my RSD under control but my doctor doesn't want me to at the moment as even the lightest exercises REALLY hurt me and I flare up after PT. I'm not only doing PT every 2-3 weeks at my local childrens hospital to see if that will help reduce any of my symptoms.

I think what the article is saying is that you MUST keep moving as much as possible. Even walking, moving your legs a little is all considered as some form of Physical Therapy. As most doctors say, if you don't move, you will lose your limbs.

Interesting post, thanks for bringing it up!